it’s that time of year again! EDS & HSD awareness month comes around quick! I’m back for my 5th annual series of Ehlers Danlos Syndrome & Hypermobility Spectrum Disorder Awareness Month videos with my dazzle of zebras from across the world. This year we have 27 zebras with 4 different types of EDS and HSD from 8 different countries sharing their experiences of what it’s like to live with these rarely understood conditions on a daily basis.

This is the first video in the 2021 series and we are talking about the worst symptoms of HSD, hEDS, cEDS & vEDS. From chronic pain and fatigue to dislocations there are huge lists of symptoms around but I want you to hear from people living with EDS on a daily basis what the worst symptoms they face are.

This video is dedicated in loving memory of Saarah Ahmed who wanted to take part in this series but sadly passed away before she could. Saarah lived with a very rare type of EDS called kyphoscoliotic EDS and she always wanted to raise awareness. Her family want her legacy to live on so please visit the links below to learn more about Saarah & her advocacy work.
https://www.instagram.com/saarah_ah_/
https://www.newsandstar.co.uk/news/19233319.saarahs-mission-still-impact/
https://www.thesun.co.uk/news/14676361/miss-universe-great-britain-finalist-dies/

I am fundraising for @TheEhlersDanlosSociety throughout May please head to https://www.instagram.com/chronicallyjenni/ to donate

If you liked this video please subscribe to my channel 🙂

You can also find me on other social media:

Instagram: https://www.instagram.com/ChronicallyJenni
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Twitter: https://www.Twitter.com/ChronicJenni
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Email: chronicallyjenni@gmail.com
Blog: https://www.chronicallyjenni.com
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Huge Thanks to Everyone who was involved in this video:

Adriana, North California, USA,18, hEDS, IG: @adrianaedswarrior

Alexis, Alberta, Canada, 20 , hEDS, She/They, IG: @therarewanderer & @ggalexis12 Blog: https://therarewanderer.travel.blog/

Alyssa Maryland, USA, hEDS, IG: @spoonfullygraceful

Amber, Gloucester, UK, 18, HSD, They/Them, IG: @_prisma_art_

Amy Mckee, Yorkshire, UK, 22, HSD, She/her, IG: @voldycat7 YT: https://www.youtube.com/channel/UCX53OHDKpIY1A5GzWTZP2EA

Ayesha, Brighton, 33, hEDS, She/her, IG: @ayeshashasha777 YT: @AyeshaShaSha

Bradley, Victoria, Australia, 29, vEDS, he/him, IG: @veds_zebra

Caroline, Essex, UK, 35, hEDS, IG: @lilcaz10

Catie, Pennsylvania, USA, 25, hEDS, She/her, IG: @lifeasazebra & @sunflower.catie

Clara, Texas, USA, 21, hEDS, IG: @clara_and_arlo

Eleanor, Scotland, 22, hEDS

Eliza, London, UK, 24, hEDS, They/them, IG: @disabled_eliza

Emma, Kent, UK, 27, hEDS, She/her, IG:@ehoughton24601

Georgia, Cardiff, 22, heds, she/her

Jasper, Newcastle, UK, 26, hEDS, He/him Twitter: @queercanthear

Jeannie Di Bon, London, UK, hEDS IG: @jeannie_di

Jenni, Essex, UK, 25, hEDS, She/her, @chronicallyjenni

Jenny, Hampshire. UK, 32, hEDS, IG: @jennycole1998 YT: @JennyCole1988 Blog: http://jaffacat.co.uk/

Jill, The Netherlands, 27, hEDS IG: @jillhubersmooren

Kate, Northumberland, UK, 26, hEDS, IG: @katestanforth

Katya, London, UK, 26, hEDS, IG: @positivelychronictravels

Luca, Ferrara, Italy, 35, cEDS, he/him, IG: @tre8bre FB:@tre8bre.1985 YT: @tre8bre

Marisol, Mexico City, Mexico, 28, hEDS, She/her, IG:@solprni

Rachel, Essex, UK, 25, hEDS, IG: @racheleanneblog

Robin , Vancover, Canada, 29, hEDS, IG: @robinhahnsopran YT: https://www.youtube.com/channel/UC4pehIOiAYumddCdpPkVncA

Simon, Devon, UK, 42, hEDS & cEDS, He/him, IG: @the_bodyboarding_eds_pilot

Special Thanks to my amazing boyfriend Ian for helping with editing!

You can support my content by:
Buying me a virtual Coffee at https://www.buymeacoffee.com/chronicjenni
You can also get a membership for extra Chronically Jenni content

Taking a free trial of audible audiobookshttps://www.amazon.co.uk/Audible-Membership/dp/B00OPA2XFG?actionCode=AMN30DFT1Bk06604291990WX&tag=chronicallyje-21

Heading to my Amazon Store & purchasing from my POTS & EDS survival kits –
https://www.amazon.co.uk/shop/chronicallyjenni

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