What is EB to me? - Fazeel #EBAwarenessWeek #EBtome

“EB to me is an unimaginably painful condition…”

Our first ‘EB to me’ story for #EBAwarenessWeek2020 is 14 year old Fazeel who has Recessive Dystrophic EB – one of 5 main types of a painful genetic skin condition causing the skin to tear and blister at the slightest touch.

In a recent poll, only 9% of people had heard of EB, and even fewer can explain what it is. Please share this post to help us raise awareness – the more people who know what EB is and the devastating effect it can have on families, the greater chance we have of finding treatments and a cure.

Please share your own #EBtome stories, either as a landscape clip from your phone, or as a comment below. Together we can #FightEB.

Read more about Fazeel and how EB impacts him here: https://bit.ly/37KLTZU

Find out more about EB and the different types: https://bit.ly/2zaDsYV

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