Follow my new media channel: https://www.youtube.com/channel/UCifzXFn_pHz-kkU9vVTSM0w Anthony Davis had to sub himself out 5 minutes into the game because of the groin strain | Suns vs Lakers Game 6
#nba #nbahighlights #lakersvssuns Video Rating: / 5
it’s that time of year again! EDS & HSD awareness month comes around quick! I’m back for my 5th annual series of Ehlers Danlos Syndrome & Hypermobility Spectrum Disorder Awareness Month videos with my dazzle of zebras from across the world. This year we have 27 zebras with 4 different types of EDS and HSD from 8 different countries sharing their experiences of what it’s like to live with these rarely understood conditions on a daily basis.
This is the first video in the 2021 series and we are talking about the worst symptoms of HSD, hEDS, cEDS & vEDS. From chronic pain and fatigue to dislocations there are huge lists of symptoms around but I want you to hear from people living with EDS on a daily basis what the worst symptoms they face are.
This video is dedicated in loving memory of Saarah Ahmed who wanted to take part in this series but sadly passed away before she could. Saarah lived with a very rare type of EDS called kyphoscoliotic EDS and she always wanted to raise awareness. Her family want her legacy to live on so please visit the links below to learn more about Saarah & her advocacy work.
https://www.instagram.com/saarah_ah_/
https://www.newsandstar.co.uk/news/19233319.saarahs-mission-still-impact/
https://www.thesun.co.uk/news/14676361/miss-universe-great-britain-finalist-dies/
I am fundraising for @TheEhlersDanlosSociety throughout May please head to https://www.instagram.com/chronicallyjenni/ to donate
If you liked this video please subscribe to my channel 🙂
You can also find me on other social media:
Instagram: https://www.instagram.com/ChronicallyJenni
Facebook: https://www.facebook.com/ChronicallyJenni
Twitter: https://www.Twitter.com/ChronicJenni
My Support Group: https://www.facebook.com/groups/785786465114178/
Email: chronicallyjenni@gmail.com
Blog: https://www.chronicallyjenni.com
Amazon Store: https://www.amazon.co.uk/shop/chronicallyjenni
Huge Thanks to Everyone who was involved in this video:
Adriana, North California, USA,18, hEDS, IG: @adrianaedswarrior
Special Thanks to my amazing boyfriend Ian for helping with editing!
You can support my content by:
Buying me a virtual Coffee at https://www.buymeacoffee.com/chronicjenni
You can also get a membership for extra Chronically Jenni content
Taking a free trial of audible audiobookshttps://www.amazon.co.uk/Audible-Membership/dp/B00OPA2XFG?actionCode=AMN30DFT1Bk06604291990WX&tag=chronicallyje-21
Heading to my Amazon Store & purchasing from my POTS & EDS survival kits –
https://www.amazon.co.uk/shop/chronicallyjenni
