Person | Self Treatment

What does it look like when someone with and someone without EDS is tested on the EDS criteria?
*****OOPS I MESSED UP AND RENATA DOESN’T PASS THE FIRST CRITERIA LOL 😬. She would have needed 3 more points on the Beighton Score. AND I FORGOT TO INCLUDE THE KNEE HYPEREXTENSION 🤦‍♀️🤦‍♀️🤦‍♀️

NEW TO MY CHANNEL? START HERE!
My Ehlers-Danlos Syndrome Story: https://www.youtube.com/watch?v=zYt9jAO0WyQ
My knee surgery: https://www.youtube.com/watch?v=OmqOchgtdh8
The types of pain EDS causes me: https://www.youtube.com/watch?v=VkixrpRbTn0
Differences between EDS, HSD, Hypermobility: https://www.youtube.com/watch?v=nTAffLj-2cI
How to get a doctor to listen to you: https://www.youtube.com/watch?v=km17oL6i94s

Renata’s new song “Running With Knives” is out on December 6th!!
Spotify: https://rb.gy/hrer5g | Apple Music: https://rb.gy/btc0sc | Featured song: https://rb.gy/eevvuz

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MERCHANDISE: https://teespring.com/stores/izzy-3
INSTAGRAM: https://www.instagram.com/izzykornblau/
@izzykornblau

P.O. BOX:
Isabelle Kornblau
PO Box 493
229 E 85th Street
New York, NY 10028

MY FAVORITE CHRONIC ILLNESS ESSENTIALS:
Pulse Oximeter: https://amzn.to/2p24Wes
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KT Tape brand: https://amzn.to/2VWQ9xs
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Cooling Towel: https://amzn.to/34q2Vb4
Long handle shower sponge: https://amzn.to/2NbNo8G
Long handle shower loofah: https://amzn.to/2NAJW6B
Shower chair: https://amzn.to/2NEp3rc
Wooden shower chair: https://amzn.to/36xgGWW
Waterproof heart rate/fitness tracker: https://amzn.to/2oNJIAU
Fitbit: https://amzn.to/2pBBUSY
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FILMING STUFF:
Camera: Canon PowerShot G5X https://amzn.to/32IqTO4
Editing software: Final Cut Pro
Other camera’s I suggest: Canon PowerShot G7X Mark II https://amzn.to/2p1tIvi
Paid links

WANT TO HELP CAPTION MY VIDEOS?
Please go to my video page https://bit.ly/2p1lzqJ and click on a video that DOESN’T say CC under the view count. Once watching the video, click those three dots just below the right side of the video and click “add transcripts.” From there you can add them! Thank you so much to everyone who helps!!!!!!!!

WHAT’S EHLERS-DANLOS SYNDROME?
EDS is a genetic connective tissue disorder that causes certain mutations to aspects or types of connective tissues and results in connective tissue that is abnormally weak, fragile, and stretchy. Connective tissue is found in all parts of the body, including your organs, ligaments, and joints. As a result, people with EDS can be affected in all of these areas, as well as more. The most common symptoms and co-morbidities include pain, dysautonomia, dislocations, GI tract dysmotility, severe joint instability, and many more. The disorder is somewhat rare, estimated to affect around 1 in every 5,000 people. However, it’s speculated by many to not be as rare as we once believed.

MORE INFO ABOUT EDS: