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In this video, five people with hypermobile Ehlers-Danlos Syndrome run through the hEDS diagnostic criteria from 2017! Hypermobile EDS is a painful genetic connective tissue disorder that makes connective tissues abnormally weak, fragile, and stretchy, leading to chronic joint and muscle pain, joint instability and dislocations, dysautonomia, fatigue, and GI tract dysmotility, among so many other symptoms. While the diagnostic criteria help to diagnose, it barely scratches the surface of the impact of this disease.

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HEDS DIAGNOSTIC CRITERIA 2017: https://ehlers-danlos.com/wp-content/uploads/hEDS-Dx-Criteria-checklist-1.pdf

DONATE TO MUSC NORRIS LAB (EDS research in regenerative medicine): https://connect2.musc.edu/com

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Sofia: @SofiaLuzbetak
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WHAT’S EHLERS-DANLOS SYNDROME?
The Ehlers-Danlos Syndromes are a group of more than 13 genetic connective tissue disorders that make connective tissue abnormally weak, fragile, and stretchy. Connective tissue is found in all parts of the body, including your organs, ligaments, and joints. As a result, people with EDS can be affected in all of these areas, as well as others. The most common symptoms and co-morbidities include chronic joint pain, dysautonomia, dislocations, GI tract dysmotility, and severe joint instability, among many others. The most common type (and the type that I have) is hypermobile EDS (formerly known as Type III), which is estimated to affect around 1 in every 5,000 people. However, it’s speculated by many to not be as rare as we once believed.

MORE INFO ABOUT EDS:
🧬 https://www.ehlers-danlos.com/eds-types/
🧬 https://bit.ly/2N95xTE
MORE INFO ABOUT POTS:
💓 https://www.potsuk.org/what_is_pots2
❤️ https://cle.clinic/2p1lByR
MORE INFO ABOUT GASTROPARESIS:
💚 https://mayocl.in/2BRQTuR
MORE INFO ABOUT MUSCLE TENSION DYSPHONIA:
🤍 https://bit.ly/2MLUYXI

NEW TO MY CHANNEL? START HERE!
☞ My Ehlers-Danlos Syndrome Story: https://www.youtube.com/watch?v=zYt9jAO0WyQ
☞ What to do if you think you have EDS? https://www.youtube.com/watch?v=zGJ1Ftpbvqk&t=347s
☞ The types of pain EDS causes me: https://www.youtube.com/watch?v=VkixrpRbTn0
☞ Differences between EDS, HSD, Hypermobility: https://www.youtube.com/watch?v=nTAffLj-2cI
☞ How to get a doctor to listen to you: https://www.youtube.com/watch?v=km17oL6i94s

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Isabelle Kornblau
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New York, NY 10028

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