it’s that time of year again! EDS & HSD awareness month comes around quick! I’m back for my 5th annual series of Ehlers Danlos Syndrome & Hypermobility Spectrum Disorder Awareness Month videos with my dazzle of zebras from across the world. This year we have 27 zebras with 4 different types of EDS and HSD from 8 different countries sharing their experiences of what it’s like to live with these rarely understood conditions on a daily basis.

This is the first video in the 2021 series and we are talking about the worst symptoms of HSD, hEDS, cEDS & vEDS. From chronic pain and fatigue to dislocations there are huge lists of symptoms around but I want you to hear from people living with EDS on a daily basis what the worst symptoms they face are.

This video is dedicated in loving memory of Saarah Ahmed who wanted to take part in this series but sadly passed away before she could. Saarah lived with a very rare type of EDS called kyphoscoliotic EDS and she always wanted to raise awareness. Her family want her legacy to live on so please visit the links below to learn more about Saarah & her advocacy work.
https://www.instagram.com/saarah_ah_/
https://www.newsandstar.co.uk/news/19233319.saarahs-mission-still-impact/
https://www.thesun.co.uk/news/14676361/miss-universe-great-britain-finalist-dies/

I am fundraising for @TheEhlersDanlosSociety throughout May please head to https://www.instagram.com/chronicallyjenni/ to donate

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Huge Thanks to Everyone who was involved in this video:

Adriana, North California, USA,18, hEDS, IG: @adrianaedswarrior

Alexis, Alberta, Canada, 20 , hEDS, She/They, IG: @therarewanderer & @ggalexis12 Blog: https://therarewanderer.travel.blog/

Alyssa Maryland, USA, hEDS, IG: @spoonfullygraceful

Amber, Gloucester, UK, 18, HSD, They/Them, IG: @_prisma_art_

Amy Mckee, Yorkshire, UK, 22, HSD, She/her, IG: @voldycat7 YT: https://www.youtube.com/channel/UCX53OHDKpIY1A5GzWTZP2EA

Ayesha, Brighton, 33, hEDS, She/her, IG: @ayeshashasha777 YT: @AyeshaShaSha

Bradley, Victoria, Australia, 29, vEDS, he/him, IG: @veds_zebra

Caroline, Essex, UK, 35, hEDS, IG: @lilcaz10

Catie, Pennsylvania, USA, 25, hEDS, She/her, IG: @lifeasazebra & @sunflower.catie

Clara, Texas, USA, 21, hEDS, IG: @clara_and_arlo

Eleanor, Scotland, 22, hEDS

Eliza, London, UK, 24, hEDS, They/them, IG: @disabled_eliza

Emma, Kent, UK, 27, hEDS, She/her, IG:@ehoughton24601

Georgia, Cardiff, 22, heds, she/her

Jasper, Newcastle, UK, 26, hEDS, He/him Twitter: @queercanthear

Jeannie Di Bon, London, UK, hEDS IG: @jeannie_di

Jenni, Essex, UK, 25, hEDS, She/her, @chronicallyjenni

Jenny, Hampshire. UK, 32, hEDS, IG: @jennycole1998 YT: @JennyCole1988 Blog: http://jaffacat.co.uk/

Jill, The Netherlands, 27, hEDS IG: @jillhubersmooren

Kate, Northumberland, UK, 26, hEDS, IG: @katestanforth

Katya, London, UK, 26, hEDS, IG: @positivelychronictravels

Luca, Ferrara, Italy, 35, cEDS, he/him, IG: @tre8bre FB:@tre8bre.1985 YT: @tre8bre

Marisol, Mexico City, Mexico, 28, hEDS, She/her, IG:@solprni

Rachel, Essex, UK, 25, hEDS, IG: @racheleanneblog

Robin , Vancover, Canada, 29, hEDS, IG: @robinhahnsopran YT: https://www.youtube.com/channel/UC4pehIOiAYumddCdpPkVncA

Simon, Devon, UK, 42, hEDS & cEDS, He/him, IG: @the_bodyboarding_eds_pilot

Special Thanks to my amazing boyfriend Ian for helping with editing!

You can support my content by:
Buying me a virtual Coffee at https://www.buymeacoffee.com/chronicjenni
You can also get a membership for extra Chronically Jenni content

Taking a free trial of audible audiobookshttps://www.amazon.co.uk/Audible-Membership/dp/B00OPA2XFG?actionCode=AMN30DFT1Bk06604291990WX&tag=chronicallyje-21

Heading to my Amazon Store & purchasing from my POTS & EDS survival kits –
https://www.amazon.co.uk/shop/chronicallyjenni

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This has to be some sort of record for season ending/serious injuries in a week. I tried to only include the most notable/serious ones. Also, there were some injuries that I couldn’t exactly pinpoint where they happened such as Malik Hooker’s. Let me know if you guys know exactly when they got hurt and I might make a part 2 if SNF and MNF have more injuries (I hope not).

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NFL Injuries in the NFL this year (2020 NFL Injury list)

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The 2020 NFL season has been a complete nightmare of injuries and we hope it doesn’t continue. The NFL injury list continues to grow and the injuries to major key players in the NFL gets bigger.

Here are the 10 most Devastating Injuries Of The 2020 NFL Season… SO FAR

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#NFLInjuries #NFL2020 #NFL

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WHAT IS EB?
The Dystrophic Epidermolysis Bullosa Research Association of America (debra of America), is the only national nonprofit dedicated to funding research and providing free services and programs for those with Epidermolysis Bullosa (EB) — “The Worst Disease You’ve Never Heard Of.”™ debra of America is dedicated to finding a cure for EB, which affects 1 out of every 20,000 live births in the United States. EB is a rare genetic connective tissue disorder. There are many genetic and symptomatic variations of EB, but all share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma. Internal organs and bodily systems can also be seriously affected by the disease. EB is always painful, is often pervasive and debilitating, and is in some cases lethal before the age of 30. There is no treatment or cure. Daily wound care, pain management, and protective bandaging are the only options available. Visit: www.debra.org

debra of America
75 Broad Street, Suite 300
New York, NY 10004
p: 212-868-1573
f: 212-868-9296
http://www.debra.org
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We discuss which is more terrifying: meth gators, or weaponized ticks? It turns out my court case against Keith for all the emojis he keeps sending me may be more problematic than I believed, and we learn that netflix and porn are killing the planet! I might just go aid that endeavor while I wait for this episode to bounce…

Taller Tales is releasing their new EP “Kalorama” on September 27th (Courtesy of Rad Pop Records) on all major music platforms. To find out more and see their tour schedule, visit www.tallertalesmusic.com

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*Spoilers* The survivalists on Alone have a very small margin of error and they know a bad injury could mean the difference between the 0,000 cash prize and tapping out. #AloneOnHistory #AloneShow #Survival
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In this video, you will see how various orthopedic sports related injuries are treated!

Check out these other Sport Injury Videos from Dr. Webb

03:33 Derrick Rose ACL Tear
06:10 Description of ACL Surgery
06:40 Tony Romo Clavicle Fracture
07:40 Description of Clavicle Fracture Surgery
08:00 Gordon Hayward Ankle Fracture Dislocation
08:45 Description of Ankle Reduction
09:28 Surgery for Ankle Fracture/Dislocation
10:15 Paul George Broken Tibia
11:35 Description of Broken Tibia Surgery

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